Ataxia is a genetic disease of the nervous system that has afflicted Encino Lady’s family for generations.

Ataxia first came into Encino Lady’s life with the affliction of her father, “Don Ray.” He was an accomplished entrepreneur who, had it not been for the disease, would have continued to build and grow his business. Yet, as the disease does to so many, he was forced to step away from the thing he loved as his symptoms progressed and worsened. With his passing, Encino Lady wished to do something to support others afflicted with the disease.

Since then, Encino Lady has also endured the disease taking its hold on her two sisters, Ivonne and Desiree. Like her father, she has seen the devastating effects Ataxia has on their daily life.

Despite the challenges of caring for her family’s treatment, Encino Lady has been empowered to help find a cure. It was the inspiration to begin a brand that could help her take care of others while raising awareness for this disease.

Don Ray

Desiree

Ivonne

Together

We can find a

It’s our goal to elevate awareness and support for Ataxia as the Encino Lady brand grows and succeeds. We believe that together, we can find a cure!

About Ataxia

Ataxia is a rare and debilitating disease of the nervous system
that affects thousands yet has has no real treatment or cure.

Ataxia is a rare degenerative disease of the nervous system. It acts on the part of the brain responsible for coordinating movement and affects a person’s ability to walk, talk, and use fine motor skills.

There are several forms of ataxia. The one that runs in Encino Lady’s family is called: Spinocerebellar AtaxiaType 3 (SCA 3) AKA: Machado Joseph Disease.

Ataxia is a genetic and symptoms can begin at all ages, gradually progressing and worsening with time. The impact of the disease is debilitating and often times life-shortening.

Over 150,000 people in the US are afflicted with Ataxia. Treatments are limited and only help a person to manage their symptoms. There is no real treatment or cure yet for those who suffer.

The National Ataxia Foundation provides information about Ataxia, its symptoms,
treatments and ongoing research. You can visit their website at www.ataxia.org to learn more.

If you would like even more ways to show your support, please join us on Desiree’s Facebook group: Machado Joseph Disease aka SCA 3.

It’s a wonderful place to learn more and follow on our journey.

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